Welcome to HUGS of Florida, Inc. - A Florida Hydrocephalus Support Group

We are a group of families brought together by Hydrocephalus with an Understanding of how important Gathering can be to help and give each other Support. We are located in the Tampa Bay Area in West Central Florida. We are a non-profit organization and the funds that we raise support our local families and the National efforts that are chosen by our Board of Directors. If you would like to get more involved, please contact me

About Us

When our son Jeremy was born in 2001, we felt very alone. We had never heard of Hydrocephalus before, and suddenly, this was something that we, and Jeremy would have to deal with for the rest of his life. We searched the internet, and purchased books to gather the most information and get the most knowledge on this incurable, but treatable condition.

Jeremy posing for our holiday photo - December 2008.	CT Scan slices show blood (white) and fluid (black) at birth and five years later.	Jeremy in the NICU when he was just 2 days old.	Jeremy in the NICU.	Jeremy's battle scars after two brain surgeries before he was four months old.

We decided, after we were out of the woods, to start a local support group for families who have to deal with Hydrocephalus. We had our first picnic in April 2004; and have had picnics two or three times a year at our house to get together and we also hold an annual event in Largo Central Park to raise funds.

We just have one goal, and that is for no person to have to go through what we did and feel like they are alone. Jeremy is now nine years old and he is doing awesome! We have been very lucky as he has only had to endure three brain surgeries. Jeremy is now in Third Grade.

"You cannot change the cards you are dealt, but you can change the way you play your hand!"